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Resources

Please be aware that the resources listed herein are provided as a convenience to our patient’s. Inclusion in this list does not mean that we are endorsing a particular site, supplier, individual, or brand, nor does it imply that we are responsible for any aspect of the content made available through these links.

1. Learn terminology & various aspects about becoming an amputee and life as an amputee

Amplitude Media

This new, independent community is dedicated to providing current, in-depth, and relevant news, information, and resources about preparing for, adapting to, and living with limb loss for individuals with amputation, and their families, caregivers, and healthcare providers.

The Amputee Coalition

Lots of useful information on this website, some of which can easily be printed. See the tab “Limb Loss Resource Center.” You can also read their magazine “In Motion” online or subscribe to it. In addition, they have a guide – called “First Step” – this was given to you, many useful articles in it. The bulk of the online resources are listed within the tab called Limb Loss Resource Center. Check out the section on Resources by Amputation Level. You could also contact this organization to see if they can set you up with a Peer Visitor.

Amputee Empowerment Partners

Lots of ways to learn about life as an amputee from community members.

Orthotics and Prosthetics Online Resource

This is the site for consumers and O&P professionals. Among other things, there are product directories, reference materials, classified ads, articles, and email discussion list for visitors asking questions or providing information. It’s easy to spend hours at a time reading and hunting through all of this site’s content.

War Amps National Amputee Centre

The War Amps site is operated by a Canadian charitable organization run by war amputees. There’s plenty of useful information for amputees of all ages and their loved ones.

Phantom Pain – From Mayo Clinic, Special to CNN

This is an article about treating phantom pain effectively with medications and other therapies.

2. Government and assistance resources

Federal government website for people with disabilities, their families, friends and organizations that serve them

This site is packed with info about disability benefits, health care, housing programs, community programs that help with finding a job, services for independent living, transportation, and more.

Wounded Warrior Project (WWP)

This not-for-profit organization exists to raise awareness and enlist the public’s aid for the needs of injured service members, to help injured service members aid and assist each other and to provide unique, direct programs and services to meet the needs of injured service members. WWP serves veterans and service members who incurred a physical or mental injury, illness, or wound, co-incident to their military service on or after September 11, 2001. WWP also serves the families of those veterans and service members.

Department of Rehabilitation Services (DORS)

DHS’s Division of Rehabilitation Services is the state’s lead agency serving individuals with disabilities. DRS works in partnership with people with disabilities and their families to assist them in making informed choices to achieve full community participation through employment, education, and independent living opportunities. Phone: (800) 843-6154

Department of Human Serivces (DHS)

DHS can help you and your family meet your basic needs. They offer a range of services to help you become healthy and self-sufficient.

3. Books, magazines, and other reading

Books:

These titles are readily available on Amazon.com and several other bookseller websites.

Just One Foot: How Amputation Cured My Disability – Judy Johnson Berma

This is a first-person account about growing up with a limb difference and the decision to amputate.

Living With a Below-Knee Amputation; A Unique Insight From a Prosthetist/Amputee – Richard Lee Riley, CP, BS

This is an insightful book covering the full range of topics related to below knee amputations such as: planning for an amputation, the terminology of prosthetics and experiences of people who wore them, legal issues, and a variety of useful resources.

Lower Limb Amputation – Dr. Adrian Cristian

This book covers topics related to life as a new amputee and all it entails.

Phantoms in the Brain: Probing the Mysteries of the Human Mind – V. S. Ramachandran

Many amputees will to some degree experience phantom sensations or phantom pain. Learn what it means to have “a phantom” and what can be done to decrease its effect.

You’re Not Alone: With the Stories of 38 Remarkable Amputees Who Conquered the Challenges of a Lifetime – John Sabolich

Inspirational recounting of life experiences by amputees. The book is a bit outdated but still very relevant.

Magazines:

inMotion

Published 6 times per year by the Amputee Coalition, this magazine is available as a paid subscription or as a free online resource on the Amputee-Coalition.org website.

New Mobility

New Mobility, a subsidiary of United Spinal Association, publishes this monthly magazine for wheelchair users. For more information, go to their website at NewMobility.com.

Resource Guides:

Limb Loss Resource Guide

Created by Amplitude Media, this guide provides a wide range of information that is useful for all amputees.

4. Pastime – travel, hobbies, sports, etc.

Dare2tri Paratriathlon Club

The Chicago-based Dare2tri Paratriathlon club serves youth, adults, and injured service members who have a physical disability such as amputation, spinal cord injury, stroke, Spina Bifida, or Cerebral Palsy as well as those with visual impairments or blindness. They serve athletes of all ability levels from beginner to elite. Athletes can compete in all three disciplines or be part of a relay team. Athletes receive the coaching, training, and support needed for these activities. Adaptive equipment is also provided as needed.

Disabled Outdoor Opportunities

A few links on the Illinois Department of Natural Resources provides dates and places for those interested in hunting and fishing.

Gimp on the Go

This online resource calls itself the premiere internet abilities travel publication.

Great Lakes Adaptive Sports Association

GLASA was formed over 20 years ago to provide sports and recreational opportunities to children and adults who had a primary physical or visual impairment. At that time, few communities had the resources to offer the adaptations needed for quality recreational and sports programs for children and adults with those types of impairments. Today, GLASA provides a wide range of daily programming for youth and adults ranging from the beginner to the elite athlete. Many of these athletes participate in local, regional and national competitions.

Illinois Wheelchair Accessible Trails

Within the TrailLink website, developed by the Rails-to-Trails Conservancy, a list can be found of trails that are accessible to wheelchairs, including a brief description of the trail, ratings, and maps.

National Amputee Golf Association

The NAGA and its regional associations promote golf for the physically challenged as a way for amputees and others to play golf despite any disability they may have. One- and two-day clinics, sponsored by hospitals and rehab centers, parks and recreational organizations, and prosthetic and orthopedic companies, get even the most novice of players into the game. Golf tournaments are organized and held throughout the year. NAGA members come from many areas around the world.

RIC Adaptive Sports and Fitness Program

The Rehab Institute of Chicago (RIC) Adaptive Sports and Fitness Program provides a place for people with physical disabilities to reach their fullest potential through fitness, recreation, and competitive sports.

5. Support Groups

ARLINGTON HEIGHTS

Chicago Area Amputee Support Group   

Primary Contact: Korrel Rosenberg

(847) 224-7752

CHAMPAIGN

East Central Illinois Amputee Support Group

Primary Contact: Bob Bevlin

(217)344-6664

CHICAGO

Children’s Amputee and Limb Deficiency Program Clinic

Primary Contact: Jamee Heelan

(312)238-8478

CHICAGO

Unlimbited Potential Amputee Support

Primary Contact: LaVerne Walker

(312) 513-2427

ELGIN

Presence St. Joseph Hospital Amputee Support Group

Primary Contact: Diwi Ymson, PT, CLT

(847) 695-3200 ext.4473

MAYWOOD

STEP UP

Primary Contact: Jennifer Camamo

(708) 216-3826

PEORIA

The Limbs Up Crew

Primary Contact: Jerry Tibbs

(309) 253-6037

QUINCY

Quincy Amputee Support Group

Primary Contact: LuAnn Kleemeyer

(217)222-9223

ROCKFORD

Rockford Support Group

Primary Contact: Paula Wegbury

(815) 978-9287

URBANA

A Leg Up – The Amputee Support Group of Central Illinois

Primary Contact: Michael Neuwirth

(217) 904-7163

Other Resources

Websites: